Your GP notes and their contents are owned by the Secretary of State for Health in your Region. Not by you..

The Implications of the articles initiated by Kingsley Manning (Ex NHS England Digital Chief) are that patients are unaware of their note ownership. Some may prefer otherwise, but most people trust their administrators not to abuse the information database. Are they right? It might not be long before a drama is written detailing potential abuse of public databases (perverse incentives)… this would focus minds. Every patient is permitted to exclude his notes from distribution to a Regional database..

The Shropshire Star reports 1st Feb 2017: Ex-NHS Digital chief ‘pressured to pass immigrants data to May’s Home Office’ –  The former head of NHS Digital has said he was put under “immense pressure” by the Home Office under Theresa May to release data on immigrants despite questioning the legality.

Kingsley Manning said he was challenged for “daring” to question if there was a legal basis for handing over confidential patient data which would help the Home Office trace suspected illegal immigrants.

Last month, the Home Office published an agreement showing the basis by which information can be requested from NHS Digital.

But Mr Manning said the NHS body has been forced to hand over data that the Home Office would find useful since “at least” 2005, sometimes to junior officials who would just “ring up” and ask for it.

In an interview with the Health Service Journal (HSJ), Mr Manning said: “We said to the Home Office ‘We need to understand what the legal basis of this is’.

“The Home Office response was ‘How dare you even question our right to this information? This is data that belongs to the public. It is paid for by the taxpayer. We should use it for public policy’.”

When Mr Manning launched a review to establish a clear legal framework for the data- sharing, there was an “enormous reluctance from both the Home Office and the Department of Health to clarify any element of this process”, he said.

“The Home Office view was that tracing illegal immigrants was a manifesto commitment.

“If I didn’t agree to co-operate (with the sharing of patient data) they would simply take the issue to Downing Street.”

The new agreement announced last month has “maximised” Home Office powers “to the absolute limit”, MImage result for NHS abuse of data cartoonr Manning said.

He added: “All the Home Office has to say now is ‘We have lost track of this individual’, and NHS Digital will have to hand over confidential patient information, such as the patient’s name, gender, date of birth, last registered address and area details of their GP.

“There is no provision for transparency, no provision for oversight or scrutiny, and there is no role for the National Data Guardian.

“Nor is there any provision to alert patients to the possibility that information from their NHS patient record could be passed on to the Home Office.”

Mr Manning said he had become “deeply concerned” once he took the helm of the NHS body in 2013 that data had been handed over since at least 2005.
The Guardian: May pressured NHS to release data to track immigration offenders

This entry was posted in A Personal View, Community Health Councils, Patient representatives, Perverse Incentives, Political Representatives and activists, Stories in the Media on by .

About Roger Burns - retired GP

I am a retired GP and medical educator. I have supported patient participation throughout my career, and my practice, St Thomas; Surgery, has had a longstanding and active Patient Participation Group (PPG). I support the idea of Community Health Councils, although I feel they should be funded at arms length from government. I have taught GP trainees for 30 years, and been a Programme Director for GP training in Pembrokeshire 20 years. I served on the Pembrokeshire LHG and LHB for a total of 10 years. I completed an MBA in 1996, and I along with most others, never had an exit interview from any job in the NHS! I completed an MBA in 1996, and was a runner up for the Adam Smith prize for economy and efficiency in government in that year. This was owing to a suggestion (St Thomas' Mutual) that practices had incentives for saving by being allowed to buy rationed out services in the following year.

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