Your notes are the property of the secretary of state – but he has never had them before until after death. Now he and the PM want them and their “data” before death.. is any IT handling safe in government hands?

Your notes are the property of the secretary of state – but he has never had them before until after death. Now he and the PM want them before death.. It is the “data” that they really want, and they seem to think it will help the assessment of GP workload. It will, but it is only part of the picture, and using the data alone would reinforce the over-management style of the last 20 years. \why not trust the professionals – they say they are overworked so they are… Taking time to get the data is simply procrastination.. The ethical issues don’t worry NHSreality as the politicians don’t have the brainpower and the time to drill down to individual level. Their failures in IT so far tell us they won’t get far! Anonymised data sets are essential to preserve confidentiality – especially if psychiatric histories are not to become a potential time bomb. Selling data to drug companies can be safe – but is any IT handling safe in government hands?

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Randeep Ramesh on 17th March2014 reported: Online tool could be used to identify public figures’ medical care, say critics

OmegaSolver’s Patient Analyser tool has been taken offline after concerns over use of ‘patient-level’ data

Randeep Ramesh reports in the Guardian 21st July 2015: PM plans patient data grab in proposals for seven-day NHS

Privacy campaigners raise concerns over NHS official’s letter to IT companies asking for confidential data for patients who get a ‘seven-day’ service

Randeep on 26th June reports: NHS patient data plans unachievable, review finds

Major Projects Authority says care.data and NHS Choices schemes have ‘major issues’ with schedule, budget and project definition

and on 17th June 2015: NHS patient data audit uncovers ‘significant lapses’ in confidentiality

HSCIC starts spot checks after failures including researchers getting patient-identifiable data without approval
On 19th Jan 2014:NHS patient data to be made available for sale to drug and insurance firms

Privacy experts warn there will be no way for public to work out who has their medical records or how they are using it
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In a worse case scenario NHSreality can forsee GP records being culled to contain the minimum, and a written old fashioned record, or a second database being used for “confidential data”. Already this may have to happen in Wales, where punishment for going private is endemic..

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This entry was posted in A Personal View, General Practitioners, Stories in the Media on by .

About Roger Burns - retired GP

I am a retired GP and medical educator. I have supported patient participation throughout my career, and my practice, St Thomas; Surgery, has had a longstanding and active Patient Participation Group (PPG). I support the idea of Community Health Councils, although I feel they should be funded at arms length from government. I have taught GP trainees for 30 years, and been a Programme Director for GP training in Pembrokeshire 20 years. I served on the Pembrokeshire LHG and LHB for a total of 10 years. I completed an MBA in 1996, and I along with most others, never had an exit interview from any job in the NHS! I completed an MBA in 1996, and was a runner up for the Adam Smith prize for economy and efficiency in government in that year. This was owing to a suggestion (St Thomas' Mutual) that practices had incentives for saving by being allowed to buy rationed out services in the following year.

One thought on “Your notes are the property of the secretary of state – but he has never had them before until after death. Now he and the PM want them and their “data” before death.. is any IT handling safe in government hands?

  1. Pingback: Is any IT handling safe in government hands? Patient data must be safeguarded – but we patients don’t trust anyone in politics or administration to deliver without scandalous error.. | NHS reality. An NHS soapbox. Speakers' corner for the

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